I had cancer as a child

As one of over 45,000 survivors of childhood cancer now in the UK, it is important that you are offered the opportunity to understand your previous treatment and how it might impact your future health. 

Around half of children diagnosed with cancer are less than 5 years old which means you may not remember much about your experience or have little information now that you are an adult. You may have many questions about your diagnosis, how it was treated and how your future life may be affected. This is why follow-up care is important for all those who had cancer as a child or teenager. 

Nowadays, children and teenagers who have completed cancer treatment are given an end of treatment summary which details the type of cancer they had and the treatment they received so they have a full record. This is important because approximately two out of three childhood cancer survivors will have a long-term side effect or 'late effect' related to their treatment. For many, these will be minor, but for some they may be more severe and can affect the body in many ways. 

It is recommended you attend the long-term follow-up clinic where you received your treatment. This allows specialists to monitor you so that any late effects can be detected and managed.

Find out more about follow-up care and long-term side effects

Where do you go for more information about your past medical history?

The hospital where you received cancer treatment as a child will still be able to access your medical records. This will show the type of cancer you had, the age when you were treated, and what treatment you received. From this information, doctors will be able to make a clinical judgement as to what, if any, late effects might occur and how these can be treated. 

If you have any questions regarding your previous cancer or late effects, please contact the Late Effects service within the paediatric oncology department at the hospital where you were treated who will be able to help you and answer your questions.

Contact your long-term follow-up clinic

Late effects

All cancer treatments are different and affect people in different ways. Most people have some side effects during treatment. But some people also have late effects of treatment.

What do I need to know?

These information sections will help to answer many of the questions you have on surviving cancer as a child, teenager or young adult.

Cancer stories

Read personal stories from young people and families affected by cancer. Each of these stories has been submitted to us by a young person or family with first-hand experience of childhood cancer, whether currently or in the past.

factsheets and booklet about late effects and living beyond cancer

Living beyond cancer information pack

Our 'Living beyond cancer' information pack has been written by clinical experts to help you live a healthy life after having cancer as a child, teenager or young adult. This pack forms part of our 'Living beyond cancer' website section. It will be given to all those attending long-term follow-up clinics and will be personalised to your individual health needs.

Contact magazine - New Beginnings

When one door closes and a new one opens, it's a time of reflection and acceptance as well as the promise of a fresh start and opportunity. After a cancer diagnosis, families are thrown into an unfamiliar and distressing world of hospitals and treatment. This issue is on 'New Beginnings' and shows how families and patients can learn to live life again.