Follow-up care after treatment

As a survivor of childhood cancer, it is important you are offered the opportunity to understand your previous treatment in a specialist long-term follow-up clinic. You may know a lot about your illness or you may know very little.

Long-term follow-up clinics provide you with an opportunity to learn about and plan the monitoring and support you may need. Long-term follow-up aims to detect and manage any long-term side effects (called late effects) which can happen after having cancer treatment. They can occur soon after treatment finishes or later in life. Follow-up will also give you support and advice on how you can stay healthy throughout your life.

What to expect in follow-up care

Progress in follow-up support services

If you were treated for childhood cancer some time ago and did not receive any follow-up care after your treatment finished, you can contact the long-term follow-up clinic direct where you received your treatment:

Directory of long-term follow-up clinics


What are long-term side effects of treatment?

Long-term side effects (called late effects) can be physical, occurring in any organ or body system, or psychological. They can occur because of the cancer, its treatment, related illness, a underlying condition or because of treatment-related complications. The hospital team at your follow-up clinic will help you with specific information about which late effects are relevant to you. 

Approximately two out of three of survivors will have a issue  or ‘late effect’ related to their treatment. For some this will be very minor, for others it may be more major. The risk of a late effect occurring is different for everyone and depends on:

  • your type of cancer
  • the age when you were treated
  • the treatment you received

We encourage you to ask your key worker or follow-up team about anything that they have not covered. You may have been treated for a tumour or condition that was not cancerous but because of the treatment you had this information still applies to you. If this is the case, your doctor will explain why.

Order or download our FREE late effect factsheets

What do I need to know?

These information sections will help to answer many of the questions you have on surviving cancer as a child, teenager or young adult.

Your feelings after treatment

You have been through a major trauma and faced things many young people have never even considered. But even though you have been treated for cancer, you are still the same person you were before.

Late effects

All cancer treatments are different and affect people in different ways. Most people have some side effects during treatment. But some people also have late effects of treatment.

factsheets and booklet about late effects and living beyond cancer

Living beyond cancer information pack

Our 'Living beyond cancer' information pack has been written for you by clinical experts to help you live a healthy life after having cancer as a child, teenager or young adult.

Contact Magazine - New Beginnings

When one door closes and a new one opens, it's a time of reflection and acceptance as well as the promise of a fresh start and opportunity. After a cancer diagnosis, families are thrown into an unfamiliar and distressing world of hospitals and treatment. This issue is on 'New Beginnings' and shows how families and patients can learn to live life again.