A true community is about feeling connected and responsible for what happens and bringing comfort and kindness during difficult times. Friends, neighbours, work colleagues, hospital staff and other families facing the same diagnosis are all types of communities that can give help and support. Wider medical and scientific communities also exist where professionals work together, both nationally and internationally, to drive positive change for all children with cancer. Communities are all around us - we just need to reach out and ask for help.
Articles from this issue
Finding community during and after cancer treatment
Teens Unite Fighting Cancer supports teenagers and young adults living with cancer and its lasting effects. Roxanne Lawrance, CEO, explains how it aims to create a community so patients can support each other as they begin to rebuild their lives
What it means to be part of a professional member community
Ceri Hogg is a research clinical nurse specialist, CCLG member and co-chair of the national Children’s Cancer Research Nurses Group (CCRNG). Here, she tells us what being part of CCLG’s professional community means to her and the benefits it brings.
Research Focus: International collaboration to find pioneering new brain tumour treatment
Proteins in our cells work together to carry out all the functions required for life. My research team at the University of Southampton studies the interactions between proteins in cancer cells, which allows us to understand which proteins drive the formation of cancers and how they contribute to cancer severity.
Medical advisor (issue 97)
Senior Academic Consultant at University of York, Consultant Paediatric Oncologist at Leeds Children’s Hospital and CCLG member.
Back to basics: What different communities can offer to families affected by childhood cancer
Natalie Kisby is Head of Family Support at Candlelighters, a regional charity providing emotional, practical and financial support to families of children with cancer in Yorkshire. She discusses the importance and advantages of different communities in supporting families through childhood cancer.
A parent's view... finding belonging and acceptance
Claire Farish’s son, Max, was 11 years old when diagnosed with cancer in May 2021. She explains how her family initially felt isolated after his diagnosis, but eventually found hope, support and understanding after reaching out.
Finding strength in those around me and helping others to do the same
Ross Long was diagnosed with non-Hodgkin lymphoma in 2013. He tells us about those who supported him and how he plans to write a book to lessen the isolation of other young people diagnosed with cancer.
Finding peer support online
Naomi Shefford-Thomas is CCLG’s Information Executive and mum to Phoebe, who was diagnosed with neuroblastoma in 2016. She tells us how invaluable online support from other parents helped her navigate her daughter’s treatment and offers advice to others looking to find the same.
Songs, support and shared experiences: A very special type of choir
Leanne Connor & Dan Blamires are members of ‘Unity: The After Cure Choir’. They tell us how the choir provides patients from the Leeds long-term follow-up (LTFU) service with a warm and welcoming space to come together, have fun and support each other.
60 seconds with Toria Pick
Toria Pick, Family Support Worker at PASIC explains about her career so far, what her role involves, what her proudest moment is , what her job means to her and how families can find out about accessing a family support worker.
How one girl’s focus and determination to keep on pedalling has inspired great things
Dave Hartley’s daughter Evie was diagnosed with a brain tumour, aged 12. Here, he tells us how the keen cyclist received support from her club, town and wider cycling communities, and how, in turn, she inspired them to achieve incredible things.
Ask the expert: Dr Ren Manias
Dr Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital and Contact's new medical adviser
Coming together to achieve research goals quicker
Collaboration, teamwork and partnerships are vital to childhood cancer research. Ellie Wilkinson, CCLG's Research Communications Executive, explains how charities are coming together and researchers are linking up to work towards a better future for children with cancer.

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