Lauren Bryce’s son, Alfie, had just begun his final year of school when he was diagnosed with leukaemia, aged 15. Here, she tells us about their struggles with the education system after his diagnosis and what could have helped him as he prepared to take his GCSEs.
Naomi Duxbury’s daughter, Mia, was aged four when diagnosed with B-cell acute lymphoblastic leukaemia in September 2021. Here, she tells us about the importance of working closely with Mia’s school to create a safe, supportive and ‘normal’ learning environment for her.
Diffuse midline glioma is a devastating brain tumour, affecting primarily young children. There’s currently no cure for this disease and treatment options are limited. This is mainly because this type of tumour is well-protected from drugs by the ‘blood-brain barrier’. This barrier physically blocks all medications from entering the brain. Our group has developed new methods of bypassing this barrier using focused ultrasound.
Louise Robinson is a neuro-oncology outreach nurse specialist at East Midlands Children’s and Young Persons’ Integrated Cancer Service. Here, she emphasises the importance of collaboration and explains how a support pathway helps young patients with their education.
New research into acute myeloid leukaemia (AML) has been funded, thanks to two Children’s Cancer and Leukaemia Group (CCLG) Special Named Funds.
Researching rare cancers can be very difficult, because researchers need lots of data to work on. In atypical teratoid rhabdoid tumours, the latest clinical trial has been vital for new research.
Research projects funded through the CCLG Research Funding Network have contributed to a new tool for neuroblastoma research.
Children’s Cancer and Leukaemia Group (CCLG) has funded four new research projects as part of a brand-new initiative that will help provide researchers in the early stages of their career with vital experience.
When your child is diagnosed with cancer, there are a lot of new terms, questions, and concerns. Palliative care can sound scary, but it covers far more than just end-of-life care...
