Why we chose to enter a clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
Clinical Psychologist at Royal Belfast Hospital for Sick Children (RBHSC) talks to us about her work.
Dr Bob Philips,Senior Academic Consultant at The University of York, Consultant Paediatric Oncologist at Leeds Children’s Hospital and CCLG member
When Beth Kellie’s son Kai was diagnosed with leukaemia, she struggled to maintain her mental and physical health while adjusting to life during his treatment. She writes on how she learnt to look after her own wellbeing and the importance of doing so.
Matteus Irsø-Coombes, Community Fundraising Coordinator at CCLG, was diagnosed with leukaemia aged 24. He tells us how his outlook on life has been altered by his cancer journey and how talking about his experiences has helped him mentally.
Lauren Murrell was diagnosed with leukaemia aged 23. She tells us how her experiences inspired her into business with her sister to help others get back to themselves through wellness products.
In an effort to improve the physical and mental health of young people diagnosed with or treated for a brain tumour, the ACT Now study (funded by The Brain Tumour Charity), is investigating whether a psychological therapy called ‘acceptance and commitment therapy’ (ACT) is both useful and possible.
Complementary therapies can play a part in supporting children and teenagers through treatment by offering relaxation and calmness. They are typically used alongside a patient’s standard medical treatment and though they do not treat or cure cancer, they can offer relief from symptoms and help promote feelings or emotional or physical wellbeing.