Ask the Expert: Emily Varley
Emily Varley, a school special educational needs and disabilities coordinator (SENDCo) based in Leicestershire
Emily Varley, a school special educational needs and disabilities coordinator (SENDCo) based in Leicestershire
Louise Robinson is a neuro-oncology outreach nurse specialist at East Midlands Children’s and Young Persons’ Integrated Cancer Service. Here, she emphasises the importance of collaboration and explains how a support pathway helps young patients with their education.
Lily Morris was diagnosed with acute lymphoblastic leukaemia (ALL) in 2022 aged 15. Now 16, she tells us about its impact on her GCSE preparations, and the support she’s received from her school and friends as she transitioned back into full-time education.
Charlotte Bowling's daughter, Amelie, was diagnosed with acute lymphoblastic leukaemia (ALL) in June 2019 aged six. Charlotte tells us about the support her daughter and her family received from her school, including an innovative way of ensuring Amelie was involved even when not physically present.
Ruby Abramow was first diagnosed with a rare head and neck cancer aged nine, before relapsing in 2019, when she was 14. Now 19, she tells us how a new, supportive environment gave her the fresh start she needed to take back control of her disrupted education.
Parents and carers of children who have been diagnosed with cancer often have many questions about school and education. Keeley McEvoy, Lead Assistant Headteacher of the Medical Needs Teaching Service working at Leeds Children’s Hospital, explains more about what to expect from hospital teaching, ongoing education support and transitioning back to school.
Naomi Duxbury’s daughter, Mia, was aged four when diagnosed with B-cell acute lymphoblastic leukaemia in September 2021. Here, she tells us about the importance of working closely with Mia’s school to create a safe, supportive and ‘normal’ learning environment for her.
Lauren Bryce’s son, Alfie, had just begun his final year of school when he was diagnosed with leukaemia, aged 15. Here, she tells us about their struggles with the education system after his diagnosis and what could have helped him as he prepared to take his GCSEs.
Children with cancer who also have learning difficulties and autism often have additional needs when it comes to their care. Jeanette Hawkins, CCLG’s Chief Nurse, tells us more about a project aiming to improve support for this group of patients.