We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Dr Guy Makin, Senior Lecturer in Paediatric Oncology at the University of Manchester and Honorary Consultant Paediatric Oncologist at Royal Manchester Children’s Hospital, talks to us about his work.
Jane Cooper, Rebekah Lewis and Rosie Williams. Research Nurses at Birmingham Children's Hospital (BCH)
Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Matteus Irsø-Coombes, Community Fundraising Coordinator at CCLG, was diagnosed with leukaemia aged 24. He tells us how his outlook on life has been altered by his cancer journey and how talking about his experiences has helped him mentally.
Dr Bob Philips,Senior Academic Consultant at The University of York, Consultant Paediatric Oncologist at Leeds Children’s Hospital and CCLG member
Dr Amandeep Samrai, Consultant Clinical Psychologist in Paediatric Oncology at Nottingham Children’s Hospital, writes on the impact that a childhood cancer diagnosis can have on emotional health and wellbeing. She offers tips on self-care and coping strategies, and explains where to access support.
