Helen Pearson, Advanced Nurse Practitioner in solid tumours, researcher and CCLG member, explains how the findings of a study have helped co-design an important new web resource to support families.
Claire Bailey's daughter, Poppy, was diagnosed with stage 4 high-risk neuroblastoma in July 2020 aged four. She writes on how the relationships she’s formed with other families have provided support both during and after Poppy’s treatment.
Single-cell transcriptomics linked to lineage tracing to interrogate the role of intra-tumour heterogeneity in shaping therapeutic susceptibility and resistance in paediatric cancer
Naomi Shefford-Thomas is CCLG’s Information Executive and mum to Phoebe, who was diagnosed with neuroblastoma in 2016. She tells us how invaluable online support from other parents helped her navigate her daughter’s treatment and offers advice to others looking to find the same.
Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
Caitlin Shorricks’ daughter Theía was diagnosed with neuroblastoma in May 2020. She explains how a special vest she created to protect Theia is now helping other families caring for children with cancer.
Gayle Routledge, mum to Lewis who sadly died of cancer aged two in 2010 and founder of bereavement charity A Child of Mine, tells us how his memory inspires all that she does now.
Naomi Shefford-Thomas, CCLG Information Executive and mum to Phoebe, who underwent almost four years of treatment for neuroblastoma, answers your questions.
