There is a wealth of information widely available to patients and families. Families are usually given information from the centre they are diagnosed in. This may include information specific to the treatment centre as well as general information about undergoing treatment. These are sometimes called ‘family held records’ or ‘family information files.’
When a cancer diagnosis is suspected, and when a cancer diagnosis is confirmed.
The information on this page may help you answer questions that may arise in consultations with family members of a child or young person (CYP) with cancer. It will also offer an understanding of the support the family receives from their unit.
In this section of the resource you will find introductory information about children and young people’s cancer services.
Children are often seen in both primary (GP) and secondary care (local hospital) setting prior to presentation. However in the UK and Ireland, there is a network of tertiary specialist centres, known as Principal Treatment Centres, for diagnosing and treating cancer in children and young people (CYP)
In this section of the resource you will find information about some of the commonest challenges faced by children with cancer.
Fatigue is a common and often debilitating side-effect of cancer treatment or sometimes of the cancer itself. The teenage and young adult age group are affected by this more so than younger children.
Changes in behaviour when a child or young person has cancer.
The need for invasive procedures is kept to a minimum and they are performed in the least painful and stressful way.
Information about hair loss and changes in appearance when children and young people have cancer.
