Decision making in rhabdomyosarcoma
Our supporters help us to continue our important research through fundraising and donations, with many of our research projects supported by our Special Named Funds.
Our supporters help us to continue our important research through fundraising and donations, with many of our research projects supported by our Special Named Funds.
Sarah Turner and J’nae Christopher are assistant psychologists within Health in Mind at Birmingham Children’s Hospital. They explain that for a child going through treatment, to be given choice and control over even seemingly small things, can be of real value.
Alexander Clarke was diagnosed with a soft tissue sarcoma aged 19, meaning he was old enough to make his own treatment choices. His mum Denise describes how he helped lessen their worries by involving them throughout, even when there were no further treatment options left for him.
Karen and Andrew Phillips were inspired to establish their own charity after their son Harry was helped through his treatment for leukaemia by a special aid. Here, Karen tells us more.
When I agreed to write this column in this edition of Contact, themed on ‘Choices’, I thought it would be easy. But it wasn’t – just like the choices that families have to make.