Doctors and scientists are always looking to improve treatments, and one way of doing this is through clinical studies. Taking part in a clinical trial is a key part of treatment for many children with cancer. In this issue, we have lots of helpful information on what clinical studies are, how they work and who is involved. We also hear from families who share their experiences of taking part in clinical studies.
Articles from this issue
The role of a chief investigator in a clinical trial
Professor Bruce Morland is a recently retired paediatric oncologist from Birmingham Children’s Hospital. Here, he tells us about his work as a chief investigator on a global clinical trial.
Finding a cure for childhood cancer: celebrating CCLG's research impact
We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
How patients and families are helping prioritise research
The Children’s Cancer Priority Setting Partnership (PSP) aims to identify gaps in research and ‘unanswered questions’ on children’s cancer by including patients and parents. Susie Aldiss, Prof Faith Gibson and Dr Jess Morgan, of the project team, explain more.
Why we chose to enter a clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
A parent's view... joining a trial
Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Ask the expert: who are research nurses and what do they do?
Jane Cooper, Rebekah Lewis and Rosie Williams. Research Nurses at Birmingham Children's Hospital (BCH)
60 seconds with Dr Guy Makin
Dr Guy Makin, Senior Lecturer in Paediatric Oncology at the University of Manchester and Honorary Consultant Paediatric Oncologist at Royal Manchester Children’s Hospital, talks to us about his work.
Using animations to help parents make treatment decisions for a clinical trial
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
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