Ask the Expert: Emily Varley
Emily Varley, a school special educational needs and disabilities coordinator (SENDCo) based in Leicestershire
Emily Varley, a school special educational needs and disabilities coordinator (SENDCo) based in Leicestershire
Louise Robinson is a neuro-oncology outreach nurse specialist at East Midlands Children’s and Young Persons’ Integrated Cancer Service. Here, she emphasises the importance of collaboration and explains how a support pathway helps young patients with their education.
Parents and carers of children who have been diagnosed with cancer often have many questions about school and education. Keeley McEvoy, Lead Assistant Headteacher of the Medical Needs Teaching Service working at Leeds Children’s Hospital, explains more about what to expect from hospital teaching, ongoing education support and transitioning back to school.
Dr. Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital, explains that while a cancer diagnosis impacts a child's learning, various support options—including hospital schools, home tutoring, and remote learning—are available to help maintain educational continuity and emotional wellbeing during and after treatment.
Naomi Duxbury’s daughter, Mia, was aged four when diagnosed with B-cell acute lymphoblastic leukaemia in September 2021. Here, she tells us about the importance of working closely with Mia’s school to create a safe, supportive and ‘normal’ learning environment for her.
New research into acute myeloid leukaemia (AML) has been funded, thanks to two Children’s Cancer and Leukaemia Group (CCLG) Special Named Funds.
Researching rare cancers can be very difficult, because researchers need lots of data to work on. In atypical teratoid rhabdoid tumours, the latest clinical trial has been vital for new research.
Research projects funded through the CCLG Research Funding Network have contributed to a new tool for neuroblastoma research.
Children’s Cancer and Leukaemia Group (CCLG) has funded four new research projects as part of a brand-new initiative that will help provide researchers in the early stages of their career with vital experience.