Naomi Shefford-Thomas is CCLG’s Information Executive and mum to Phoebe, who was diagnosed with neuroblastoma in 2016. She tells us how invaluable online support from other parents helped her navigate her daughter’s treatment and offers advice to others looking to find the same.
Dave Hartley’s daughter Evie was diagnosed with a brain tumour, aged 12. Here, he tells us how the keen cyclist received support from her club, town and wider cycling communities, and how, in turn, she inspired them to achieve incredible things.
Teens Unite Fighting Cancer supports teenagers and young adults living with cancer and its lasting effects. Roxanne Lawrance, CEO, explains how it aims to create a community so patients can support each other as they begin to rebuild their lives
We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
Professor Bruce Morland is a recently retired paediatric oncologist from Birmingham Children’s Hospital. Here, he tells us about his work as a chief investigator on a global clinical trial.
The Children’s Cancer Priority Setting Partnership (PSP) aims to identify gaps in research and ‘unanswered questions’ on children’s cancer by including patients and parents. Susie Aldiss, Prof Faith Gibson and Dr Jess Morgan, of the project team, explain more.
Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
