Naomi Shefford-Thomas is CCLG’s Information Executive and mum to Phoebe, who was diagnosed with neuroblastoma in 2016. She tells us how invaluable online support from other parents helped her navigate her daughter’s treatment and offers advice to others looking to find the same.
Claire Farish’s son, Max, was 11 years old when diagnosed with cancer in May 2021. She explains how her family initially felt isolated after his diagnosis, but eventually found hope, support and understanding after reaching out.
Natalie Kisby is Head of Family Support at Candlelighters, a regional charity providing emotional, practical and financial support to families of children with cancer in Yorkshire. She discusses the importance and advantages of different communities in supporting families through childhood cancer.
Senior Academic Consultant at University of York, Consultant Paediatric Oncologist at Leeds Children’s Hospital and CCLG member.
Ross Long was diagnosed with non-Hodgkin lymphoma in 2013. He tells us about those who supported him and how he plans to write a book to lessen the isolation of other young people diagnosed with cancer.
Professor Bruce Morland is a recently retired paediatric oncologist from Birmingham Children’s Hospital. Here, he tells us about his work as a chief investigator on a global clinical trial.
The Children’s Cancer Priority Setting Partnership (PSP) aims to identify gaps in research and ‘unanswered questions’ on children’s cancer by including patients and parents. Susie Aldiss, Prof Faith Gibson and Dr Jess Morgan, of the project team, explain more.
We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
