Ask the expert: who are research nurses and what do they do?
Jane Cooper, Rebekah Lewis and Rosie Williams. Research Nurses at Birmingham Children's Hospital (BCH)
Jane Cooper, Rebekah Lewis and Rosie Williams. Research Nurses at Birmingham Children's Hospital (BCH)
Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
In an effort to improve the physical and mental health of young people diagnosed with or treated for a brain tumour, the ACT Now study (funded by The Brain Tumour Charity), is investigating whether a psychological therapy called ‘acceptance and commitment therapy’ (ACT) is both useful and possible.
Complementary therapies can play a part in supporting children and teenagers through treatment by offering relaxation and calmness. They are typically used alongside a patient’s standard medical treatment and though they do not treat or cure cancer, they can offer relief from symptoms and help promote feelings or emotional or physical wellbeing.
The Ellen MacArthur Cancer Trust supports young people aged 8-24 in rebuilding their confidence after cancer through sailing and UK-wide adventure activities. Scott Wilson, Communications Officer at the Trust, explains the positive impact these trips have on wellbeing.
Caitlin Shorricks’ daughter Theía was diagnosed with neuroblastoma in May 2020. She explains how a special vest she created to protect Theia is now helping other families caring for children with cancer.
Clinical Psychologist at Royal Belfast Hospital for Sick Children (RBHSC) talks to us about her work.
Dr Amandeep Samrai, Consultant Clinical Psychologist in Paediatric Oncology at Nottingham Children’s Hospital, writes on the impact that a childhood cancer diagnosis can have on emotional health and wellbeing. She offers tips on self-care and coping strategies, and explains where to access support.