Ceri Hogg is a research clinical nurse specialist, CCLG member and co-chair of the national Children’s Cancer Research Nurses Group (CCRNG). Here, she tells us what being part of CCLG’s professional community means to her and the benefits it brings.
Ross Long was diagnosed with non-Hodgkin lymphoma in 2013. He tells us about those who supported him and how he plans to write a book to lessen the isolation of other young people diagnosed with cancer.
Naomi Shefford-Thomas is CCLG’s Information Executive and mum to Phoebe, who was diagnosed with neuroblastoma in 2016. She tells us how invaluable online support from other parents helped her navigate her daughter’s treatment and offers advice to others looking to find the same.
The Children’s Cancer Priority Setting Partnership (PSP) aims to identify gaps in research and ‘unanswered questions’ on children’s cancer by including patients and parents. Susie Aldiss, Prof Faith Gibson and Dr Jess Morgan, of the project team, explain more.
We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
Professor Bruce Morland is a recently retired paediatric oncologist from Birmingham Children’s Hospital. Here, he tells us about his work as a chief investigator on a global clinical trial.
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Jane Cooper, Rebekah Lewis and Rosie Williams. Research Nurses at Birmingham Children's Hospital (BCH)
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
