Louie first started having constant chest infections, sore limbs, weight loss, and feeling generally lethargic. After a couple of courses of antibiotics, we were told it was suspected sepsis.
After blood tests, Louie was diagnosed with acute lymphoblastic leukaemia. This was heart-breaking, and our lives changed drastically!
After induction, he was moved to treatment regimen C, which involved more intense chemotherapy than predicted. I felt sick as other parents told me their child was on treatment regimen A. Louie had two seizures, which were so scary. After his first seizure, he was admitted to the ICU due to the methotrexate in the lumbar puncture procedure.
We are now in maintenance cycle 4, and Louie will finish his treatment on 8 December 2024 - we cannot wait for this day!
Things have changed so much for us as a family. Louie is so used to the hospital that I don't think he remembers much before all his treatment. He goes to school when he is well enough, but it's hard for him as he misses so much time.
His sisters have had to grow up quickly but have coped incredibly. It's a life-changing situation that nobody should ever be in. People ask how we do it. I think if Louie can do it, then so can we!