Our call for a Children and Young People's Cancer Plan

We’re on a mission with Young Lives vs Cancer to call for a Children and Young People’s Cancer Plan, to make sure their unique and critical needs are recognised, understood, and addressed to improve experiences and outcomes for young cancer patients.

Cancer is still the biggest killer by disease in the UK for children and young people, and over 4,000 children and young people under 25 are diagnosed every year.

Cancer in children and young people is different from older adults – it’s less common, needs different treatment, has distinct impacts (including mental health and financial), and comes at a key developmental stage in life. This means the care and support they need is unique, and plans and strategies that work for adults just won’t work for them.

Following campaigning from many cancer charities, including Young Lives vs Cancer and CCLG, the UK Government they will create a National Cancer Plan for England, and on World Cancer Day 2025 they confirmed the plan will include children and young people. As well as this, they re-established the Children and Young People Cancer Taskforce. This is a huge step towards making sure children and young people with cancer, and their families, get all the care and support they need and deserve. 

Download the plan

Cancer in children and young people is different from cancer in older adults because it:

  • Is less common
  • Is biologically different and often faster growing
  • Comes at a unique time and developmental stage
  • Is treated differently  than adults
  • Has significant long-term treatment effects
  • Has unique emotional and mental health impacts
  • Is not commonly associated with lifestyle or environmental factors
  • Has specific  financial implications, such as travel costs to specialised care.

Because of this, the care and support necessary to meet the needs of this group is different from adults with cancer.

The common characterisation of childhood and young people’s cancer as ‘rare’ is misleading causing this age group to be overlooked.

Together the children and young people’s cancer sector ask the government to work alongside them to deliver quality care and support for young cancer patients.

Children and Young People’s 10 Year Cancer Plan

Every year in the UK over 4,000 children and young people under 25 are diagnosed with cancer.

By 2033 the Plan will improve outcomes for children and young people with cancer and deliver the tailored support they need.

This Children and Young People’s Cancer Plan will:

  • Ensure timely diagnosis

    • Robust referral pathways exist
    • National standards are in place
    • Standardised education packages for health and care professionals
    • Commitment to Child Cancer Smart awareness campaign
    • Funded screening and surveillance research programmes.
  • Deliver world-class treatment

    • Rapid access to new drugs and treatments
    • De-escalation and de-toxification of therapies for good risk diseases
    • Identification of new treatments for primary therapy resistant disease
    • All children and young people with cancer offered appropriate, timely genomic testing
    • All children and young people (including boys) offered HPV vaccination.
  • Enable excellent patient experience

    • Experiences of children and young people undergoing cancer treatment are understood
    • Continuation of Under 16 Cancer Patient Experience Survey
    • Capture bespoke experiences of 16-24 year-olds with cancer  
    • The children and young people’s cancer workforce is adequately resourced to meet patient need.
  • Build world-class research

    • Participation in clinical trials among children remains high, and rises in teenagers and young adults (50% by 2025)
    • Children and young people’s Cancer Priority Setting Partnership are the focus of research funders
    • Systematic review of research priorities by national funding bodies
    • Strengthened Cancer registry data collection for children and young people.
  • Support all psychosocial needs

    • Funded travel to and from specialist treatment centres
    • Young people’s and parents’ employment rights are protected
    • Evidence-based mental health interventions are part of the treatment pathway
    • Mental health support provided for parents and siblings
    • Age appropriate and personalised care
    • Educational progress is not negatively impacted. 
  • Ensure quality survivorship

    • A national survivorship passport scheme is in place
    • Evidence-based surveillance guidelines are implemented
    • Long-term psychosocial support for survivors is in place
    • Joined-up, single point of access and long-term follow-up care.

Children and Young People's Cancer Plan: Frequently Asked Questions (FAQs)

This Children and Young People’s Cancer Plan sets out key priorities for the Department for Health and Social Care so that the unique needs of children and young people with cancer are recognised and catered for.

When we say children and young people, we mean anyone from birth up to the age of 25.

The Children and Young People’s Cancer Plan includes priorities and recommendations across lots of different aspects of children and young people’s cancer care, including diagnosis, treatment, patient experience, research, psychosocial support, and living beyond cancer. These priorities are set out for the Department of Health and Social care to understand and take action on them.

Each government in each UK nation makes decisions about health, as health is a devolved matter. This Children and Young People’s Cancer Plan is aimed at the UK Government in Westminster and patients receiving treatment and care for cancer in England, but we believe that the priorities and recommendations apply across the entire UK and could be useful in other nations as well.

The Children and Young People’s Cancer Plan has been developed by two leading charities in childhood and young people’s cancer; Young Lives vs Cancer and the CCLG: The Children & Young People’s Cancer Association.

This Children and Young People’s Cancer Plan has been developed by using research and evidence, policy recommendations and clinical insight from Young Lives vs Cancer and CCLG: The Children & Young People’s Cancer Association. It also reflects the views and experiences of children and young people with cancer and their families that have been shared with the charities.

Every year in the UK over 4,000 children and young people under 25 are diagnosed with cancer, and they have unique needs that require a bespoke Children and Young People’s Cancer Plan.

Cancer in children and young people is different from older adults because it is less common, requires different treatment, has unique impacts (including mental health and financial), and comes at a unique developmental stage in their life. This means the care and support they need is different from adults.

Cancer strategies are often focused on adult cancers and adult care pathways. This means that they leave out children and young people, aren’t tailored for what they need, and rarely work for childhood and young people’s cancers. It is important that their needs are not overlooked.

The Scottish Government already has a “Cancer Strategy for Children and Young People”, the Northern Ireland Executive has a “Cancer Strategy for Northern Ireland” which includes children and young people, and the Welsh Government are developing a “Cancer Services Action Plan”. It’s important that the UK Government also has a clear plan for children and young people with cancer in England. We know that they have committed to delivering a 10-Year Cancer Plan, but so far have not published this, and it is not expected to specifically address the needs of children and young people.

This plan was developed by CCLG: The Children and Young People's Cancer Association and Young Lives vs Cancer. Published January 2023.

For more information, please contact policyandinfluencing@younglivesvscancer.org.uk